Congenital Diaphragmatic Hernia


 
 
Congenital Diaphragmatic Hernia (CDH) is a severe birth defect that affects 1 in every 2500 babies.  Click on the links below to learn more.
 
 
 

A quick, easy to understand overview of Congenital Diaphragmatic Hernia. + CDH VIDEO
 


In depth description from the Children's Hospital of Philadelphia + CDH VIDEO
 

Congenital Diaphragmatic Hernia Research
International CDH Research Web Site
 


Easy-to-understand definitions of medical terms frequently used with CDH patients



Frequently asked questions about Congenital Diaphragmatic Hernia
 


"The Surgical Evaluation and Surgical Management of Diaphragmatic Hernia" by Lesli A. Taylor, MD, Vic-President of CHERUBS
 


100's of links to CDH research articles

 

Congenital Diaphragmatic Hernia Research

 click here to see how many babies have been born with CDH since 2000




In the United States:


There are approximately 6 million pregnancies every year throughout the United States:

* 4,058,000 live births
* 1,995,840 pregnancy losses

1 in 2500 babies is diagnosed with CDH. That means over 1600 babies are born with Congenital Diaphragmatic Hernia EVERY YEAR in the United States Alone.

With a 50% survival rate, 800 of those babies will die.

Today, and every day, at least 4 families will be devastated with the news of CDH.



Worldwide:

The World Census Bureau estimates that in 2008
over 350,000 babies are born in the world every day = 147 babies will be born with CDH every day.

According to the IDB (International Database) from the U.S. Census site, 257 people are born every minute globally. That means that somewhere in the world, every 10 minutes a baby is born with Congenital Diaphragmatic Hernia. Every 10 minutes.

1 CDH baby every 10 minutes.




These numbers add up to over a
half million CDH babies since January 1, 2000!

No one knows the cause of CDH.

No one knows how to prevent CDH.

Hardly anyone knows what CDH is unless someone you love has been affected by it.

CHERUBS and the CDH Study Group are the only 2 organizations actively researching Congenital Diaphragmatic Hernia on a global platform. CHERUBS is the only organization offering global support to families of children born with CDH, with members in 38 countries.


What can you do to help?

Raise awareness. http://www.cdhsupport.org/awareness, http://www.cafepress.com/cherubs, http://www.zazzle.com/cherubs

Donate to research. http://www.cdhresearch.org

Participate in events. http://www.cdhsupport.org/members/viewforum.php?f=184

Help support CDH families. http://www.cdhsupport.org



References:

http://www.americanpregnancy.org/main/statistics.html
http://www.worldpopulationbalance.org/pop/metronome.php
http://www.census.gov/ipc/www/idb/
CHERUBS- The Association of Congenital Diaphragmatic Hernia Research, Advocacy, and Support
DISCLAIMER:The information on all pages of this web site is for education only. It is not meant to be used in place of proper medical care and advice. CHERUBS does not encourage or discourage any medical treatments or procedures. Our purpose is to educate families and medical care providers so that they may make the best decisions for the patients' interests. You can not compare your child to other children born with CDH, they are all different. The opinions aired by members are not necessarily the views of all members, staff, or of CHERUBS.


 

 
Congenital Diaphragmatic Hernia Statistics

Click here to find out how many babies have been born with CDH since 2000.
Congenital Diaphragmatic Hernia

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CHERUBS is proud to a member of The Alliance of Congenital Diaphragmatic Hernia Organizations.

Alliance of Congenital Diaphragmatic Hernia Organizations

CDH Organizations from around the world, working together on one goal.  Helping families affected by Congenital Diaphragmatic Hernia.



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