CHERUBS - The Association of Congenital Diaphragmatic Hernia Research Awareness and Support

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.      Diaphragmatic Hernia Research, Awareness and Support
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CHERUBS - The Association of Congenital Diaphragmatic Hernia Research Awareness and Support
CHERUBS - The Association of Congenital Diaphragmatic Hernia Research, Awareness and Support



CHERUBS - The Association of Congenital Diaphragmatic Hernia Research, Awareness and Support

The History of Congenital Diaphragmatic Hernia



- Diaphragmatic Hernia was first described in 1575 by Pare' in reporting in 2 autopsies of adults who had acquired diaphragmatic hernias by trauma.Cherub Landon Tyler Boothe

- In 1672, the first description of Congenital Diaphragmatic Hernia was reported by Lazarus Riverius during the autopsy of an adult male. Miraculously, this man lived 24 yrs with CDH in the 17th century.

- In 1701, Holt reported the first case of CDH in a child.

- In 1796, Morgagni discussed various types of diaphragmatic hernia, including the anterior CDH that bears his name.

- In 1827, Cooper described the symptoms, pathology and classification of CDH.

- 1834 Laennec was the first to suggest a laparotomy that could be used to withdraw intestine from the chest cavity.

- In 1847, Bowditch presented the first collected series of patients with diaphragmatic hernia in 1847 before the Boston Society for Medical Observation.

- In 1848, Bochdalek, described CDH that occurs posterolateral. This now bears his name.

- In 1888, the first recorded attempt of a laparotomy to reduce the hernia was made by Naumann.

- In 1902 the first reported successful operation of an infant born with CDH

- In 1946, Robert Gross reported the first successful repair of a CDH in a baby less than 24 hours old.

- In 1976, ECMO (Extracorporeal Membrane Oxygenation) was first used successfully in the treatment of persistent pulmonary hypertension.

- In 1976, doctors first used lambs to create a CDH, researching for the cause and best treatment of CDH.

 - In 1989, Michael Harrison led the team at the UCSF in the first succesful open fetal surgery for CDH.

- In 1992, "Gentle Ventilation" of CDH first began at the University of Florida, led by David Kays

- In 1994, the first NIH sponsored clinical trial for fetal surgery was done at UCSF for the open repair of congenital diaphragmatic hernia

- In 1995, The CDH Study Group was formed with medical professionals from the around the world with a vested interest in CDH.

- In 1995, the first international organization for families and medical care providers of children born with Congenital Diaphragmatic Hernia was created. CHERUBS still leads the CDH community in providing support and works with the medical committee to provide information and research options.

- In 1996, first successful fetoscopic temporary tracheal occlusion for CDH was done at UCSF by Harrison and team.

Cherub Dakota Cawvey - In 1997, CHERUBS published it's first Congenital Diaphragmatic Hernia Research Survey Results, tallying research data from families.

- In 1997, the first on-line information site for CDH was created by CHERUBS.

- In 2000, First NIH sponsored randomized controlled trial for fetal surgery was done at UCSF

- In 2000, the first international conference for families affected by CDH was held in Orlando.

- In 2007, the Association of Congenital Diaphragmatic Hernia Organizations (ACDHO) was formed.

- Also in 2007, the Official Congenital Diaphragmatic Hernia Awareness Ribbon was created by families of children born with CDH to help raise awareness and research of the birth defect.

- In 2007, the first on-line forum specificially for CDH was created

- In 2008, CHERUBS created the first web site dedicated solely to free access of information for research of CDH.

- In 2009, the first CDH Conference with members of 6 CDH groups met in San Antonio, TX

- In 2010, CHERUBS launched the national "Save the Cherubs" Campaign

- In 2010, ACDHO created their first web site to help CDH families and CDH researchers to come together

- In 2010, CHERUBS launched the fight for 2 Congressional Bills to raise CDH Research Funds and to protect the free right to raise CDH Awareness

- Stonewall Jackson suffered from an unrepaired Diaphragmatic Hernia. Whether it was Congenital is not known.

- CDH occurs in 1 of every 2500 to 4000 babies, as reported in 2006 by The CDH Study Group. The survival rate is still 50%.




References:

A population-based study of congenital diaphragmatic hernia.  - Torfs CP, Curry CJ, Bateson TF, Honoré LH.
California Birth Defects Monitoring Program, Emeryville 94608.

Congenital Diaphragmatic Hernia; Prem Puri; Current Problems in Surgery; Volume XXI Number 10 October 1994









CHERUBS - The Association of Congenital Diaphragmatic Hernia Research, Awareness and Support
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CHERUBS is an IRS recognized 501(c)III non-profit organization founded in 1995.
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CHERUBS - The Association of Congenital Diaphragmatic Hernia Research Awareness and Support
Mailing Address:  3650  Rogers Rd. #290, Wake Forest, NC 27587, USA
Telephone:  919-610-0129    Fax:  815-425-9155    info@cdhsupport.org

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