From: "ann_poore" To: Subject: [cherubs] Re: INS and New York Date: Wednesday, May 03, 2006 10:42 AM ECMO was originally INVENTED by the US ARMY in the 1960s but abandoned until the 1970's Here are several links: http://www.med.umich.edu/ecmo/history.htm http://www.emedicine.com/PED/topic2895.htm http://www.bioe.pitt.edu/Courses/bioe1050/2005/GROUPS/Group03/eh.htm http://www.mch.com/clinical/picu/ecmo/history.htm Google History of ECMO. Ann, Jordan's Mommy --- In cherubs@yahoogroups.com, patrice ellis wrote: > > Please refer to the hospital website for more information > > Charles Stolar, MD > Pediatric Surgery > > Charles Stolar, MD > Chief, Division of > Pediatric Surgery The Division of Pediatric Surgery at Morgan Stanley Children's Hospital of NewYork-Presbyterian has continued to build on its tradition of excellence in clinical care, research and teaching. One of the most notable recent developments is the designation of a regional pediatric trauma center at Babies & Children's Hospital. When it became operational in mid-1997, it was only the second such facility in the New York metropolitan area and just the third in the state. It has become a major focus of activity within the hospital, necessitating an extensive renovation of the emergency room, including the development of a trauma/resuscitation operating area, as well as an expansion of the intensive care unit from 14 to 27 beds to accommodate the anticipated clinical demand. > Under the stewardship of committed surgical scientists, the division continues to thrive in both basic and applied research. Charles J. Stolar, MD, who has been on the staff since 1982, was a pioneer in developing extracorporeal membrane oxygenation (ECMO), leading to the establishment of the third clinical ECMO program in the country, at Morgan Stanley Children's Hospital of NewYork- Presbyterian. Largely through Dr. Stolar's clinical and research efforts, we have established the standard for infant survival in congenital diaphragmatic hernias. > > > ann_poore wrote: ECMO was engineered by the United States Army Corps of Engineers and > Doctors. > > Ann, Jordan's Mommy > > --- In cherubs@yahoogroups.com, patrice ellis > wrote: > > > > Hello Frederica > > Lily was never seen in Boston. She was born last year at > Columbia which is located in New York City at Columbia University. > They have a great CDH team there where they see a number of CDH > babies each year. Most of the doctors in Boston were actually > trained at Columbia since the surgeons there do specialize in CDH > cases and are the actual creators of the ECMO machine used in most > CDH cases. > > > > Patrice > > > > > > > > Frederica DAmbrosi wrote: > > Hello Patrice > > > > Has your daughter been seen in Boston? Columbia Presybyterian > Hospital where is that? NYcity? > > > > > > Frederica > > > > patrice ellis wrote: > > Hello > > There is a new CDH Clinic in New York at the Columbia > Presybyterian Hospital headed up by Dr Mark Arkovitz. My daughter > Lily is seen there and they are absolutely great. We live in New > Jersey but I am almost positive they accept New York Medicaid. If > you want the number to reach them I will be more than happy to give > it to you. > > > > Frederica DAmbrosi wrote: > > Hello > > > > I have been fighting for 2 years now to keep going to Boston to > the CDH clinic. I have brought Sarah to Doctors here dont do any > test, they dont see any reason too. Sarah was seen by a Pulmonologist > and the only thing they want to do is fix her concaved chest. when I > asked how is this effecting her breathing I was told we dont know. > I then asked what test they have done and wherew they are getting > they infomation to care for Sarah and they told me they got it from > me. I gave them the ifo from Boston and all her test results and that > was to only thing they used. When I told them I wanted a second > oppion they sent in a doctor and he said they feel it in is Sarah > best interest to fixe her chest. I then told them that Boston said > Sarah's chect is not effecting her breathing and it will take a year > or longer to fix it . In Sarah's case it was not worth fixing. The > doctor here said they will no loner see Sarah . > > > > This is constant the Doctors do not do any test of they own and > take my word and when I dis agree with them they tell me not to bring > Sarah back. > > > > > > > > Heidi DL Cadwell wrote: > > You need to reapply making them understand that CDH is not > handled in any > > hospital anywhere else than in Boston. That's where her surgeon is > and > > where she needs to be seen sue to the complexity of CDH and the > many issues > > behind it. > > > > Heidi Cadwell mom to Tanina, 3/6/95, lcdh, asthma, and boy- > wonder Linds, > > 8/12/96 > > New Hampshire, USA > > > > > > On 4/21/06 7:17 PM, "Frederica DAmbrosi" wrote: > > > > > > > > > > > hello > > > has any one from New York, who has or had medicaid been turned > down to be > > > seen in Boston's CDH clinic? > > > > > > > > > Frederica > > > > > > > > > > > > Frederica, Mom of Anthony 5--Oppositional Defiant > Disorder (ODD) , > > > Sarah 3 1/2 --Congential Diaphmatic Hernia (R-CDH), Donnalee 22 -- > months > > > Trisomy 13 mosic. . > > > > > > > > > > > > > > > > > > > > > > > > > > > --------------------------------- > > > Yahoo! Messenger with Voice. Make PC-to-Phone Calls to the US > (and 30+ > > > countries) for 2¢/min or less. > > > > > > [Non-text portions of this message have been removed] > > > > > > > > > > > > CHERUBS- The Association of Congenital Diaphragmatic Hernia > Research, > > > Advocacy, and Support > > > http://www.cherubs-cdh.org > > > 270 Coley Rd. > > > Henderson, NC 27537 USA > > > Phone: 252-492-6003 > > > Fax: 815-425-9155 > > > Yahoo! Groups Links > > > > > > > > > > > > > > > > > > > > > > > CHERUBS- The Association of Congenital Diaphragmatic Hernia > Research, Advocacy, and Support > > http://www.cherubs-cdh.org > > 270 Coley Rd. > > Henderson, NC 27537 USA > > Phone: 252-492-6003 > > Fax: 815-425-9155 > > > > > > > > --------------------------------- > > YAHOO! GROUPS LINKS > > > > > > Visit your group "cherubs" on the web. > > > > To unsubscribe from this group, send an email to: > > cherubs-unsubscribe@yahoogroups.com > > > > Your use of Yahoo! Groups is subject to the Yahoo! Terms of > Service. > > > > > > --------------------------------- > > > > > > > > > > > > Frederica, Mom of Anthony 5--Oppositional Defiant > Disorder (ODD) , Sarah 3 1/2 --Congential Diaphmatic Hernia (R- CDH), > Donnalee 22 --months Trisomy 13 mosic. . > > > > > > > > > > > > > > > > > > --------------------------------- > > Celebrate Earth Day everyday! Discover 10 things you can do to > help slow climate change. Yahoo! Earth Day > > > > [Non-text portions of this message have been removed] > > > > > > > > CHERUBS- The Association of Congenital Diaphragmatic Hernia > Research, Advocacy, and Support > > http://www.cherubs-cdh.org > > 270 Coley Rd. > > Henderson, NC 27537 USA > > Phone: 252-492-6003 > > Fax: 815-425-9155 > > > > > > > > SPONSORED LINKS > > Article health wellness Center for health and wellness > Health and wellness Health and wellness program Health wellness > product Health and wellness job > > > > --------------------------------- > > YAHOO! GROUPS LINKS > > > > > > Visit your group "cherubs" on the web. > > > > To unsubscribe from this group, send an email to: > > cherubs-unsubscribe@yahoogroups.com > > > > Your use of Yahoo! Groups is subject to the Yahoo! Terms of > Service. > > > > > > --------------------------------- > > > > > > > > > > > > Patrice, mom to Lily, 9 months, LCDH repaired twice, > Coarchtation of the Aorta repair, O2, CPAP, G-tube, and now taking > all her feeds by mouth...Goodbye Gtube... Ned, 11yrs old, ADHD, ODD, > and the best big brother ever... > > > > > > > > > > > > > > --------------------------------- > > Yahoo! Messenger with Voice. PC-to-Phone calls for ridiculously low > rates. > > > > [Non-text portions of this message have been removed] > > > > > > > > CHERUBS- The Association of Congenital Diaphragmatic Hernia > Research, Advocacy, and Support > > http://www.cherubs-cdh.org > > 270 Coley Rd. > > Henderson, NC 27537 USA > > Phone: 252-492-6003 > > Fax: 815-425-9155 > > > > > > > > SPONSORED LINKS > > Article health wellness Center for health and wellness > Health and wellness Health and wellness program Health wellness > product Health and wellness job > > > > --------------------------------- > > YAHOO! GROUPS LINKS > > > > > > Visit your group "cherubs" on the web. > > > > To unsubscribe from this group, send an email to: > > cherubs-unsubscribe@yahoogroups.com > > > > Your use of Yahoo! Groups is subject to the Yahoo! Terms of > Service. > > > > > > --------------------------------- > > > > > > > > > > > > Frederica, Mom of Anthony 5--Oppositional Defiant > Disorder (ODD) , Sarah 3 1/2 --Congential Diaphmatic Hernia (R- CDH), > Donnalee 22 --months Trisomy 13 mosic. . > > > > > > > > > > > > > > > > > > --------------------------------- > > Talk is cheap. Use Yahoo! Messenger to make PC-to-Phone calls. > Great rates starting at 1¢/min. > > > > [Non-text portions of this message have been removed] > > > > > > > > CHERUBS- The Association of Congenital Diaphragmatic Hernia > Research, Advocacy, and Support > > http://www.cherubs-cdh.org > > 270 Coley Rd. > > Henderson, NC 27537 USA > > Phone: 252-492-6003 > > Fax: 815-425-9155 > > > > > > > > --------------------------------- > > YAHOO! GROUPS LINKS > > > > > > Visit your group "cherubs" on the web. > > > > To unsubscribe from this group, send an email to: > > cherubs-unsubscribe@yahoogroups.com > > > > Your use of Yahoo! Groups is subject to the Yahoo! Terms of > Service. > > > > > > --------------------------------- > > > > > > > > > > > > Patrice, mom to Lily, 9 months, LCDH repaired twice, > Coarchtation of the Aorta repair, O2, CPAP, G-tube, and now taking > all her feeds by mouth...Goodbye Gtube... Ned, 11yrs old, ADHD, ODD, > and the best big brother ever... > > > > > > > > > > > > > > --------------------------------- > > How low will we go? Check out Yahoo! Messenger's low PC-to-Phone > call rates. > > > > [Non-text portions of this message have been removed] > > > > > > > > > CHERUBS- The Association of Congenital Diaphragmatic Hernia Research, Advocacy, and Support > http://www.cherubs-cdh.org > 270 Coley Rd. > Henderson, NC 27537 USA > Phone: 252-492-6003 > Fax: 815-425-9155 > > > > SPONSORED LINKS > Article health wellness Center for health and wellness Health and wellness Health and wellness program Health wellness product Health and wellness job > > --------------------------------- > YAHOO! GROUPS LINKS > > > Visit your group "cherubs" on the web. > > To unsubscribe from this group, send an email to: > cherubs-unsubscribe@yahoogroups.com > > Your use of Yahoo! Groups is subject to the Yahoo! Terms of Service. > > > --------------------------------- > > > > > > Patrice, mom to Lily, 9 months, LCDH repaired twice, Coarchtation of the Aorta repair, O2, CPAP, G-tube, and now taking all her feeds by mouth...Goodbye Gtube... Ned, 11yrs old, ADHD, ODD, and the best big brother ever... > > > > > > > --------------------------------- > Love cheap thrills? Enjoy PC-to-Phone calls to 30+ countries for just 2¢/min with Yahoo! Messenger with Voice. > > [Non-text portions of this message have been removed] > CHERUBS- The Association of Congenital Diaphragmatic Hernia Research, Advocacy, and Support http://www.cherubs-cdh.org 270 Coley Rd. Henderson, NC 27537 USA Phone: 252-492-6003 Fax: 815-425-9155 Yahoo! Groups Links <*> To visit your group on the web, go to: http://groups.yahoo.com/group/cherubs/ <*> To unsubscribe from this group, send an email to: cherubs-unsubscribe@yahoogroups.com <*> Your use of Yahoo! Groups is subject to: http://docs.yahoo.com/info/terms/