From doyleew@... Wed Mar 03 07:18:49 2004 Return-Path: X-Sender: doyleew@... X-Apparently-To: cherubsrus@yahoogroups.com Received: (qmail 74061 invoked from network); 3 Mar 2004 15:18:49 -0000 Received: from unknown (66.218.66.167) by m19.grp.scd.yahoo.com with QMQP; 3 Mar 2004 15:18:49 -0000 Received: from unknown (HELO n37.grp.scd.yahoo.com) (66.218.66.105) by mta6.grp.scd.yahoo.com with SMTP; 3 Mar 2004 15:18:49 -0000 Received: from [66.218.67.250] by n37.grp.scd.yahoo.com with NNFMP; 03 Mar 2004 15:17:12 -0000 Date: Wed, 03 Mar 2004 15:17:12 -0000 To: cherubsrus@yahoogroups.com Message-ID: In-Reply-To: <20040303043337.32790.qmail@...> User-Agent: eGroups-EW/0.82 MIME-Version: 1.0 Content-Type: text/plain; charset=ISO-8859-1 Content-Length: 4215 X-Mailer: Yahoo Groups Message Poster X-eGroups-Remote-IP: 66.218.66.105 From: "doyle_propst" X-Originating-IP: 12.4.255.195 Subject: Re: Top 2 Names - Mission Statement - Beverly X-Yahoo-Group-Post: member; u=7232406 X-Yahoo-Profile: doyle_propst Beverly, NOT stupid at all. When I was expecting Cecilia I recall reading the stories, not just of survivors but those that didn't survive and thinking these are the angels that will watch over my unborn child. Perhaps to spin upon the "positive" in the negative - instead of calling them non-survivors we could call them the winged babes of hope? One day each and every case that is presented will some how some way help others - I truly believe this. We were blessed by them - otherwise we wouldn't be who we are today! Hugs, Elizabeth --- In cherubsrus@yahoogroups.com, beverly brandenburg wrote: > > > > Elizabeth, > > Anytime that I think about my son Jonathan Jr. or any other baby that has had to go through cdh I always think that they are Babies of Hope I don't know if that makes since to you or not but any time that I hear that a baby is born with CDH they are the baby of hope that will bring us one step closer that no other parent will ever have to go through the pain that we have all been through. The idea is probably stupid but I figured that I would run it past you anyway. Thanks for listening. > > Beverly > > Proud Mother of > > Jonathan Jr. 10/02/00 - 11/07/00 > > Joshua 11/07/02 > > Michael 12/21/03 > > Mommy's little angels > > > > doyle_propst wrote: Hello everyone, > > The top 2 names are as follows: > > 1. Baby's Breath, Saving Lives and Families > 2. Wings of Hope > > Are there any other suggestions out there? Please let me know - if > you don't want to post you can email me at doyleew@a... and I will > post your suggestion - if you feel uneasy about it - without > revealing who you are! > > Mission statement - this is important and can change as the > organization evolves. What should our mission be - number one I > believe is help and support to families. This is the something that > the other organization has not done and all other non profits DO. > This is how people/donors/entities who wish to donate decide to do so. > > Research - this is something WE can NOT do ourselves - it must be > done by hospitals - but we can provide those who want to voluntarily > participate in such things - the information. > > The research surveys that we filled out for the other organization - > does anyone remember them? When we showed ours to Dr. Robert Boyle > he really questioned it's Merritt. Please note that UVA doctors MUST > teach, do research and practice to be there. Some of the questions > never ended up on the results and were sort of random and not quite > relevant. So, I truly don't believe I can do this - I'm not a > medical researcher - but if anyone would like to do this who has this > background - speak up. > > Advocacy - this is a very touchy issue now with the IRS and > non profits. They have now ruled that non profits should not be > lobbing or promoting political issues unless they are a political > nonprofit to begin with - this and I believe that the only thing I > would want to really push first is Ultrasound Techs being certified. > The issue of "experimental procedures" is really not thought through - > I know that Cecilia went through many things that were > considered "experimental" - even ECMO is still considered on some > levels and so too! Yet, these things save lives. > > What I want you all to do is think of something that you believe in > your heart is what this organization should promote. I also would > like to promote help for the health care workers who help us too. > > Let me know what you think - here or you can email me at > doyleew@a... > > Peace, > Elizabeth > > >