Finding out that the baby you are expectanting has a birth defect is heartbreaking.  You try to find out as much information as possible and have a hard time processing what the doctors are telling you.   We know it's a very hard time.  You rejoice and grieve all at once.  You're not alone.  There are 100's of families at CHERUBS who know exactly what you are going through. 

Browse our web site and meet other families.   At CHERUBS, we are one big CDH family.  Though we wish you had never heard of CDH, we are glad that you found us and we are here for you and will help as much as we can during your journey.

Learn About CDH -   Learn all about CDH, knowledge will increase your baby's chances of survival and a normal life.  We try to use the easiest terms possible here, so you don't have to translate all the medical jargon.

What is CDH? - Learn about what Congenital Diaphragmatic Hernia is, the different types of CDH, prenatal diagosis and more.

CDH Treatments - Descriptions and videos about ECMO, in utero procedures, steroid treatments, birth options and more.

ECMO - 50% of cherubs require Extracorporeal Membrane Oxygenation (heart and lung bypass).   Find out more about this machine and why it's so important to deliver at a hospital equipped with one.

Common Terms - Easy-to-understand definitions of medical terms frequently used with CDH patients

CDH Q&A - Frequently asked questions about CDH

CDH Stats - Basic information and statistics about Congenital Diaphragmatic Hernia

CDH Parent Reference Guide - Downloadable, easy to carry booklet that explains CDH and offers information and advice

CDH Baby Book - Download and print for free or buy the book through our web site, our CDH Baby Book is a one-of-a-kind guide for CDH parents

Downloadable Information - Read and print all of our materials for free including past newsletters, research results and more.

CDH Kids Song - A cute and easy to sing children's song that helps explain what CDH is

CDH Hospitals - CHERUBS does *not* refer specific hospitals, institutions or doctors to our members.   The following lists are for informational purposes only.

CDHSG Members - A list of all the participating hospitals in the International CDH Study Group

ECMO Centers - A list of hospitals that offer Extracorporeal Membrane Oxygenation

CDH Clinics - Hospitals that offer clinics specifically created to help manage healthcare for CDH parents, especially for long-term follow up care

Research Studies - There are several current CDH research studies that families can participate in by donating blood work.   CHERUBS encourages all families to join in research so that someday no babies will suffer from Congenital Diaphragmatic Hernia.

Financial Help

HOPE Totebags - Our totebag project to help expectant CDH families.   Make sure to join CHERUBS and give us your mailing address to receive your totebag.

Financial Help - Sources of support to turn to for financial help.

CHERUBS Family Assistance Fund - CHERUBS new fund to help families with the financial burdens of CDH.

Support

Designate A Cherub Liason -  Assign one family member or friend to be the go-between you and everyone else.   It greatly reduces the stress on you to "keep everyone updated"

On-Call Support - CDH parents ready to lend a shoulder or an ear if you need to talk

CDH Forums - our free message board for CDH families.  Come meet other parents, ask questions, learn about the journeys of others and make friends with people who have walked a mile in your shoes

Advice from Members - What to pack, how to prepare and other advice from other CDH parents

Local Support - CHERUBS International & State Representatives and Hospital Angels

Prayer Requests - Our prayer list goes out about once a week and is posted on our forums, blog and Facebook.  Request prayers or pray for other families fighting CDH

Stories of Cherubs - Over 400 stories of babies born with CDH, divided into 2 sections so you can choose to read all of them or just the stories of survivors

Photos of Cherubs - Over 700 photos of babies born with CDH, divided into 2 sections so you can choose to see all of them or just the survivors

Blog Ring - Lots of CDH families their own blogs, our Blog Ring joins them all together so that they are easier to find

Holland Poem - Inspirational poem that has given encouragement to a generation of CDH families

CHERUBS

Join CHERUBS - Membership is free and includes our forums, conferences, get-togethers, newsletters and more.   Meet over 3000 families and give and receive support

Donate in Honor of Your Cherub - Help CHERUBS to help other CDH families by making a tax-deductible donation

Adopt A Hospital - Help to provide information and resources to CDH families at your cherub's hospital

CDH Awareness Shop - 1000's of Congenital Diaphragmatic Hernia Awareness items

CHERUBS Q&A - Frequently asked questions about CHERUBS, like how to submit your story, how to add your cherub's photo to the site, how to get a totebag and more

About Us - Who we are and what we do

Disclaimer - Do not substitute the information on this web site for proper medical advice

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