CHERUBS - The Association of Congenital Diaphragmatic Hernia Research Awareness and Support

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.      Diaphragmatic Hernia Research, Awareness and Support
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CHERUBS - The Association of Congenital Diaphragmatic Hernia Research Awareness and Support
CHERUBS - The Association of Congenital Diaphragmatic Hernia Research, Awareness and Support



CHERUBS - The Association of Congenital Diaphragmatic Hernia Research, Awareness and Support

Congenital Diaphragmatic Hernia Support - Grieving Families


When we honestly ask ourselves which person in our lives means the most us, we often find that it is those who, instead of giving much advice, solutions, or cures, have chosen rather to share our pain and touch our wounds with a gentle and tender hand. The friend who can be silent with us in a moment of despair or confusion, who can stay with us ... See Morein an hour of grief and bereavement, who can tolerate not knowing, not curing, not healing and face with us the reality of our powerlessness, that is a friend who cares" Henri Nouwen


Saying Good-Bye


If You Have To Say Good-Bye -  It's so hard to say good-bye and to remember to do things like take fingerprints, photos, etc.   This list helps parents remember to do all the things that will bring them comfort and help to remember their baby for years to come.  

Funeral Program -  Most funeral programs provided by funeral homes are impersonal and made for adults.   CHERUBS has created a program template that you can personalize for your cherub.

NILMDTS -  "Now I Lay Me Down To Sleep" is an amazing non-profit organization of volunteer photographers who will come to the hospital to take very beautiful and compassionate photos of your baby if you have to say good-bye.

Funeral Advice From Members - Words of wisdom and funeral suggestions from other grieving parents.

Memorial Donations / Donating In Lieu of Flowers - Often, family and friends opt to donate to charity instead of sending flowers.   At CHERUBS, tax-deductible donations can be made in memory of your cherub.


Support

Why My Child?  - That's the question every grieving parents asks.   Though there are no answers, we hope that these words help grieving CDH parents to know that they did nothing wrong and CDH just isn't fair.

Compassionate Friends -  Wonderful international support group for grieving parents.  Compassionate Friends has chapters in most major cities.


Grieving Parents Wish List -  What grieving parents wish the world knew and understood about what it's like to lose your child.

On-Call Support - CDH parents ready to lend a shoulder or an ear if you need to talk.

CDH Forums - our free message board for CDH families.  Come meet other parents, ask questions, learn about the journeys of others and make friends with people who have walked a mile in your shoes.

Local Support - CHERUBS International & State Representatives and Hospital Angels.

Elective Termination - Some families chose to let go early.   At CHERUBS we support all families who have dealt with CDH.

Member Blogs - Start a free blog at CHERUBS to keep your family and friends updated about your child, while also bringing them to our site to learn more about CDH.

Ways To Remember Your Cherub -  Positive ways to honor your cherub's memory and ways to help other CDH families as well.

Blog Ring - Lots of CDH families their own blogs, our Blog Ring joins them all together so that they are easier to find

Prayer Requests - Our prayer list goes out about once a week and is posted on our forums, blog and Facebook.  Request prayers or pray for other families fighting CDH.

Stories of Cherubs - Stories of other CDH families who fought CDH and grief.

Photos of Cherubs - Photos of other cherubs who have earned their wings.

Research Studies - Current CDH Research studies that you may be able to participate in.

Expecting Again - We know this is a very hard time for many grieving parents.  We're here to offer information and support.

Books To Read - A list of books that other greiving CDH parents recommend.


CHERUBS

Join CHERUBS - Membership is free and includes our forums, conferences, get-togethers, newsletters and more.   Meet over 3000 families and give and receive support.

Donate in Memory of Your Cherub - Help CHERUBS to help other CDH families by making a tax-deductible donation.

Ways To Remember Your Cherub -  Positive ways to honor your cherub's memory and ways to help other CDH families as well.

Adopt A Hospital - Help to provide information and resources to CDH families at your cherub's hospital.

CDH Awareness Shop - 1000's of Congenital Diaphragmatic Hernia Awareness items.

CHERUBS Q&A - Frequently asked questions about CHERUBS, like how to submit your story, how to add your cherub's photo to the site, how to get a totebag and more.

About Us - Who we are and what we do

Contact Us

Our Members
The following is a map of our members as of February 5, 2010.   It includes  families who have lost children to Congenital Diaphragmatic Hernia.   It may not include those families who joined while expecting and have not updated their membership forms.   It may not reflect accurate locations of members who have moved and not updated their membership forms.

If you would like to be matched with another family, please contact your State or Country Representative.    We greatly respect the privacy of these families and therefore, only members who gave permission for matching on their membership forms will be matched with other members.  If your state or country does not have a Representative, please consider volunteering.   Unfortunately, our main office does not have the time or volunteer power to match all 3000 members and cannot respond directly to matching requests - that is the purpose of our Representatives




CHERUBS - The Association of Congenital Diaphragmatic Hernia Research, Awareness and Support
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Copyright © 1995-2009.  CHERUBS.  All rights reserved.   Graphics & text created by CHERUBS may be used freely but we ask for a link back to our site.
CHERUBS is an IRS recognized 501(c)III non-profit organization founded in 1995.
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CHERUBS - The Association of Congenital Diaphragmatic Hernia Research Awareness and Support
Mailing Address:  3650  Rogers Rd. #290, Wake Forest, NC 27587, USA
Telephone:  919-610-0129    Fax:  815-425-9155    info@cdhsupport.org

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