CHERUBS - The Association of Congenital Diaphragmatic Hernia Research, Awareness and Support
|
.
.

Grieving CDH Families
Saying Good-bye
Support
CHERUBS
|
|
CHERUBS - The Association of Congenital Diaphragmatic Hernia Research, Awareness and Support
Congenital Diaphragmatic Hernia Support - Grieving Families
When we honestly ask ourselves which person in our lives means the most
us, we often find that it is those who, instead of giving much advice,
solutions, or cures, have chosen rather to share our pain and touch our
wounds with a gentle and tender hand. The friend who can be silent with
us in a moment of despair or confusion, who can stay with us ... See Morein
an hour of grief and bereavement, who can tolerate not knowing, not
curing, not healing and face with us the reality of our powerlessness,
that is a friend who cares" Henri Nouwen
Saying Good-Bye
If You Have To Say Good-Bye
- It's so hard to say good-bye and to remember to do things like
take fingerprints, photos, etc. This list helps parents
remember to do all the things that will bring them comfort and help to
remember their baby for years to come.
Funeral Program
- Most funeral programs provided by funeral homes are impersonal
and made for adults. CHERUBS has created a program template
that you can personalize for your cherub.
NILMDTS
- "Now I Lay Me Down To Sleep" is an amazing non-profit
organization of volunteer photographers who will come to the hospital
to take very beautiful and compassionate photos of your baby if you
have to say good-bye.
Funeral Advice From Members - Words of wisdom and funeral suggestions from other grieving parents.
Memorial Donations / Donating In Lieu of Flowers
- Often, family and friends opt to donate to charity instead of sending
flowers. At CHERUBS, tax-deductible donations can be made
in memory of your cherub.
Support
Why My Child?
- That's the question every grieving parents asks. Though
there are no answers, we hope that these words help grieving CDH
parents to know that they did nothing wrong and CDH just isn't fair.
Compassionate Friends
- Wonderful international support group for grieving
parents. Compassionate Friends has chapters in most major cities.
Grieving Parents Wish List - What grieving parents wish the world knew and understood about what it's like to lose your child.
On-Call Support - CDH parents ready to lend a shoulder or an ear if you need to talk.
CDH Forums
- our free message board for CDH families. Come meet other
parents, ask questions, learn about the journeys of others and make
friends with people who have walked a mile in your shoes.
Local Support - CHERUBS International & State Representatives and Hospital Angels.
Elective Termination - Some families chose to let go early. At CHERUBS we support all families who have dealt with CDH.
Member Blogs
- Start a free blog at CHERUBS to keep your family and friends updated
about your child, while also bringing them to our site to learn more
about CDH.
Ways To Remember Your Cherub - Positive ways to honor your cherub's memory and ways to help other CDH families as well.
Blog Ring - Lots of CDH families their own blogs, our Blog Ring joins them all together so that they are easier to find
Prayer Requests -
Our prayer list goes out about once a week and is posted on our forums,
blog and Facebook. Request prayers or pray for other families
fighting CDH.
Stories of Cherubs - Stories of other CDH families who fought CDH and grief.
Photos of Cherubs - Photos of other cherubs who have earned their wings.
Research Studies - Current CDH Research studies that you may be able to participate in.
Expecting Again - We know this is a very hard time for many grieving parents. We're here to offer information and support.
Books To Read - A list of books that other greiving CDH parents recommend.
CHERUBS
Join CHERUBS
- Membership is free and includes our forums, conferences,
get-togethers, newsletters and more. Meet over 3000
families and give and receive support.
Donate in Memory of Your Cherub - Help CHERUBS to help other CDH families by making a tax-deductible donation.
Ways To Remember Your Cherub - Positive ways to honor your cherub's memory and ways to help other CDH families as well.
Adopt A Hospital - Help to provide information and resources to CDH families at your cherub's hospital.
CDH Awareness Shop - 1000's of Congenital Diaphragmatic Hernia Awareness items.
CHERUBS Q&A
- Frequently asked questions about CHERUBS, like how to submit your
story, how to add your cherub's photo to the site, how to get a totebag
and more.
About Us - Who we are and what we do
Contact Us
Our Members
The following is a map of
our members as of February 5, 2010. It includes
families who have lost children to Congenital Diaphragmatic
Hernia. It may not include those families who joined while
expecting and have not updated their membership forms. It
may not reflect accurate locations of members who have moved and not
updated their membership forms.
If you would like to be matched with another family, please contact your State or Country Representative.
We greatly respect the privacy of these families and therefore, only
members who gave permission for matching on their membership forms will
be matched with other members. If your state or country does not
have a Representative, please consider volunteering.
Unfortunately, our main office does not have the time or volunteer
power to match all 3000 members and cannot respond directly to matching
requests - that is the purpose of our Representatives.
|
|