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 Save the Cherubs Model - Zoe Fisher
by TracyLanders on Sat Jul 24, 2010 10:47 am

 Who Has Written? Share your letters and responses! :)
by KarenMyers on Fri Jul 23, 2010 4:58 pm

 CHERUBS needs your help to win $100,000!!!!
by JessicaPayne on Sun Jul 18, 2010 10:31 pm

 CHERUBS "Adopt A Hospital" Program
by jessifontaine on Fri Jul 16, 2010 8:32 pm

 Birthday
by JenniferTenney on Wed Jul 14, 2010 10:22 am

 NEW CDH Awareness contest! YOU can win great prizes!!!! :)
by JessicaPayne on Thu Jul 08, 2010 4:25 pm

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by Dawn Torrence Williamson on Wed Jun 30, 2010 4:01 pm

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by Dawn Torrence Williamson on Wed Jun 30, 2010 3:46 pm

 Save the Cherubs Model - Isabelle Lyons
by Dawn Torrence Williamson on Wed Jun 30, 2010 3:44 pm

 CHERUBS in the APX Contest on Facebook
by Nicole on Wed Jun 30, 2010 3:37 pm

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by Dawn Torrence Williamson on Wed Jun 30, 2010 3:35 pm

 Save the Cherubs Model - Dakota Tenney
by Dawn Torrence Williamson on Wed Jun 30, 2010 3:34 pm

 Save the Cherubs Model - Kaleigh Myers
by Dawn Torrence Williamson on Wed Jun 30, 2010 3:34 pm


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CHERUBS - The Association of Congenital Diaphragmatic Hernia Research Awareness and Support - Congenital Diaphragmatic Hernia Research, Awareness & Support

Welcome to CHERUBS

The Association of Congenital Diaphragmatic Hernia Research, Awareness and Support

We invite all CDH parents and medical professionals to join our free membership to access our on-line services.


  NEW CDH Awareness contest! YOU can win great prizes!!!! :) Reply to this News Item Print this Topic E-Mail this Topic
Posted on Thu Jul 08, 2010 9:48 am by Dawn Torrence Williamson
News We hope everyone is voting! Want to raise more awareness and get votes in honor / memory of your cherub? Start an event page for the APX contest! Name it "Vote every day in honor/memory of _____ by voting for CHERUBS in the APX contest!" so every time your family and friends log in, they will be reminded to vote!

This is a contest inside a contest! CDH Awareness Kits and T-Shirts that say "I am a CDH Hero! I helped to 1000's of babies born with Congenital Diaphragmatic Hernia by raising money for CDH Research and Support!" will be awarded to the people who (1 prize each):

1. Whoever has the most "attendees" on their Vote for CHERUBS in the APX contest FB event.
2. Whoever has the most active wall on their event by getting people to vote and then post that they voted.
3. Whoever is the most creative off of Facebook to raise votes! Handing out flyers, have a "vote in" at work or school, talk to your church, etc. (take photos!)

Awards given by voting done on CHERUBS forums on August 22nd - 30th. All members can log in and vote on who should win the above 3 awards.

If CHERUBS wins the $100,000 prize, all 3 winners will ALSO win (valued at over $350!);

- 2 tickets to the Angel Ball
- "Stories of Cherubs Vol. I"
- "Stories of Cherubs Vol. II"
- CDH Baby Book
- "Cooking with Cherubs" Vol. II
- 4 personalized t-shirts each with their cherub's CDH Awareness ribbons on them
+ the above prizes of a CDH Awareness Kit and contest T-shirt!

What a great and fun way to raise awareness and funds for a good cause!!!!!

Here is an example event - http://www.facebook.com/event.php?eid=100836783305050

It is in memory of my son, Shane. I will recruit voters but won't be in this contest within a contest since I'm the President of CHERUBS and that wouldn't be fair. But all other members and volunteers can participate! :)

You are welcome to use any text or graphics off of this event page, CHERUBS site, our FB pages, etc that can help you in the contest!

This news item has 27 Views and 1 Comments. Post your comment

  CHERUBS in the APX Contest on Facebook Reply to this News Item Print this Topic E-Mail this Topic
Posted on Tue Jun 15, 2010 12:25 pm by Dawn Torrence Williamson
News CHERUBS made it to Phase II in the APX Gives Back contest!!!!!

You can vote by going to http://www.facebook.com/apxalarm?v=app_121215224555298&ref=mf

1. Go to http://www.facebook.com/apxalarm?v=app_121215224555298&ref=mf

2. Then click LIKE.

3. Next click the "Start nom and voting"

4. Click on the blue logo for Eastern charities

5. Scroll down (load more if necessary) and find CHERUBS and endorse us!

You can vote once EVERY day! Please repost or share! EVERY DAY! Repost too please! Smile

On Friday, we were in 1st place but now in Phase II the votes have been reset so we need to get all the votes we can!!! We have a chance to win $100,000!!!! All winnings from this contest will go to CDH Research and CDH Support!!!!!!!!



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This news item has 65 Views and 7 Comments. Post your comment

  CHERUBS needs your help to win $100,000!!!! Reply to this News Item Print this Topic E-Mail this Topic
Posted on Sat May 22, 2010 9:20 am by Dawn Torrence Williamson
News CHERUBS is in a contest to win $100,000 on Facebook. We are currently in 7th place and behind 1st place by only 400 votes. We have an excellent shot at winning this contest!!!!!

I know a lot of you are on Facebook and I'm asking our CHERUBS members to help by voting, reposting and getting other members to vote. If we all work together (as the whole CDH community should), then I know we can do do this and do a whole lot of good for CDH Research and Support!!!!!!!!!

It takes just a few seconds to vote and post. We can vote EVERY day, once a day.

How the contest works....

The APX Givesback Project needs your help in honoring local charities that are doing heroic work in communities across the United States. Getting involved is quick and easy. Here are the key steps to follow:

Nominate your favorite charity – Beginning May 3, 2010 Facebook users can nominate their favorite local charity. It might be a nonprofit you volunteer with or just one you feel is doing great work in helping others. If your favorite charity has already been nominated, you can endorse them on APX Givesback’s Facebook application. The top 15 charities receiving the most endorsements in each of the 5 regions through June 12th become Regional Finalists.

Vote for your favorite charity – On June 14, 2010 the real fun begins. Facebook users from all over the US and Canada will be able to vote for their top 5 charities who they feel are having the most impact in local communities. The eligible charity receiving the most votes through August 21, 2010 will be named the APX Givesback Project’s top local charity. The top overall charity will receive $100,000. But don’t worry; each of the 5 regions will also have a winner who receives a $30,000 donation.

Please vote for us! All proceeds to benefit CDH Research and Family Support!!!!

http://www.facebook.com/apxalarm

or http://www.facebook.com/apxalarm?v=app_121215224555298

Click the "Like" button, then click to Vote / Nominate. We are listed under Eastern NonProfits. Find us and click on the Endorse button.

Please post and invite friends to vote also!

As CHERUBS members, volunteers, representatives and amabassadors... we really need your help to win this! This is OUR charity and if we ALL work together, I know we can do it!!!! Smile

This news item has 133 Views and 5 Comments. Post your comment

Warning !  Congenital Diaphragmatic Hernia Research Bill Reply to this News Item Print this Topic E-Mail this Topic
Posted on Mon Apr 19, 2010 11:31 pm by Dawn Torrence Williamson
News
CHERUBS is very proud to present our Congenital Diaphragmatic Hernia Research Bill to be presented to Congress to help promote more federal funding for CDH research. With the help of our members, other CDH organizations and the public, we are determined to promote CDH Research to help save the lives of babies born with Congenital Diaphragmatic Hernia.

We are currently searching for bill sponsorship. If you would like to contact your Congressman or Senator and ask for their support of this bill, please visit http://www.cdhbills.org for more information.



-----------------------------------


In request of a Congressional Bill for the benefit of Congenital Diaphragmatic Hernia Research



Submitted by CHERUBS – The Association of Congenital Diaphragmatic Hernia Research, Advocacy and Support

3650 Rogers Rd. #290

Wake Forest, NC 27587

919-610-0129

research@cdhsupport.org





A BILL



To amend the Public Health Service Act to provide for the national collection of data on babies born with Congenital Diaphragmatic Hernia in a standardized manner, and for other purposes.



Be it enacted by the Senate and House of Representatives of the United States of America in Congress assembled,



SECTION 1. SHORT TITLE.



This Act may be cited as the ‘CDH Research Act of 2010’.



SECTION 2. FINDINGS.



The Congress finds as follows:

(1) Congenital Diaphragmatic Hernia is a birth defect.

(2) Congenital Diaphragmatic Hernia has a rate of occurrence of 1 in every 2500 babies.

(3) Congenital Diaphragmatic Hernia affects approximately 1600 babies each year in the United States.

(4) Congenital Diaphragmatic Hernia occurs when the diaphragm fails to fully form, allowing abdominal organs to migrate into the chest cavity and preventing lung growth.

(5) The majority of Congenital Diaphragmatic Hernia patients have underdeveloped lungs and/or poor pulmonary function.

(6) Congenital Diaphragmatic Hernia patients often endure long-term complications such as pulmonary hypertension, pulmonary hypoplasia, asthma, gastrointestinal reflex, feeding disorders and developmental delays.

(7) Congenital Diaphragmatic Hernia survivors sometimes endure long-term mechanical ventilation dependency, skeletal malformations, supplemental oxygen dependency, enteral and parenteral nutrition and hypoxic brain injury.

(Cool Congenital Diaphragmatic Hernia has a survival rate of 50%.

(9) Congenital Diaphragmatic Hernia has affected over 600,000 babies worldwide since the year 2000.

(10) Babies born with Congenital Diaphragmatic Hernia endure extended hospital stays in intensive care with multiple surgeries. Extended hospital stays in some cases have exceeded one year.

(11) Congenital Diaphragmatic Hernia is as common as Spina Bifida and Cystic Fibrosis.

(12) Congenital Diaphragmatic Hernia is diagnosed in utero in only 75% of cases.

(13) Congenital Diaphragmatic Hernia is treated through mechanical ventilation, heart and lung bypass (Extracorporeal Membrane Oxygenation) machines and surgical repair.

(14) Congenital Diaphragmatic Hernia surgical repair is often outgrown thus leading to reherniation and requiring additional surgery.

(15) Congenital Diaphragmatic Hernia does not discriminate based on race, gender, religion, economic status or lack of prenatal care.

(16) The cause of Congenital Diaphragmatic Hernia is unknown.

(17) Congenital Diaphragmatic Hernia takes more lives in the average year in the United States than lightening strikes, tornadoes, hurricanes and floods combined.

(1Cool The average hospital bill per Congenital Diaphragmatic Hernia patient is $500,000.

(19) The estimated total annual economic impact of Congenital Diaphragmatic Hernia in the United States is in excess of $800,000,000.

(20) Annual Federal support for Congenital Diaphragmatic Hernia research at the National Institutes of Health is currently estimated at less than $5,000,000.



SECTION 3. SENSE OF CONGRESS ON NIH FUNDING FOR CONGENITAL DIAPHRAGMATIC HERNIA RESEARCH.



(1) In General- It is the sense of the Congress that the Director of the National Institutes of Health should increase the allocation of funds and other resources for Congenital Diaphragmatic Hernia research.

(2) Measures To Increase the Research of Congenital Diaphragmatic Hernia shall include—

(a) Funds for national CDH patient registries through current databases kept by research organizations such as The International Congenital Diaphragmatic Hernia Study Group and CHERUBS - The Association of Congenital Diaphragmatic Hernia Research, Advocacy and Support for the purposes of finding commonalities in the search of possible causes and better treatments of Congenital Diaphragmatic Hernia.

(b) Funds for national CDH patient registries through current databases kept by research organizations such as The International Congenital Diaphragmatic Hernia Study Group and CHERUBS - The Association of Congenital Diaphragmatic Hernia Research, Advocacy and Support for the purposes of researching the long term health of survivors of Congenital Diaphragmatic Hernia.

(c) Funds for genetic research into possible causes of Congenital Diaphragmatic Hernia.

(d) Funds for research into more successful surgical and neonatal medical procedures that may increase the survival rate of babies born with Congenital Diaphragmatic Hernia.



SECTION 4. NATIONAL PUBLIC AWARENESS CAMPAIGN.



(1) In General- The Secretary of Health and Human Services shall carry out a national campaign to increase public awareness and knowledge of Congenital Diaphragmatic Hernia

(2) Measures To Increase the Public Awareness of Congenital Diaphragmatic Hernia under the national campaign under subsection (1) shall include—

(a) the dissemination of information on the definition of Congenital Diaphragmatic Hernia;

(b) the dissemination of information on good neonatal care of Congenital Diaphragmatic Hernia patients; and

(c) the promotion of good prenatal care and ultrasound to detect Congenital Diaphragmatic Hernia in utero.

This news item has 119 Views and 4 Comments. Post your comment

  CDH Fundraisers, Research, Grants and the future of CHERUBS Reply to this News Item Print this Topic E-Mail this Topic
Posted on Thu Apr 08, 2010 10:07 pm by Dawn Torrence Williamson
News
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Dear Members,

We’d like to welcome to our Fundraising and Grant Committees, Gina Cappola Della Porta! Gina is an experienced grant writer currently working for a local university’s research department. She is now heading up our Fundraising and Grant Committees and working on several events and grants. She is a volunteer but our goal is to hire her full time in the near future to secure funding for CHERUBS and all of our services. In the month she has volunteered for us, she has secured the Angel Ball, helped us find funding for the Save the Cherubs Campaign and started an NIH grant collaboration with Mass General for CDH research. Gina has no personal connection to CDH - she saw a post about our charity and felt guided to join our cause through the goodness of her heart. She is an angel! Such an angel that I hesitate to post her last name because we know she’d be targeted by other charities and who could blame them?! But Gina has worked with us and we know she’s dedicated to helping CHERUBS and cannot be swayed! We are so very excited and grateful to have her on board! Smile

CHERUBS has done a lot over the past 15 years with limited donations and only volunteers who are busy working other jobs and/or taking care of their cherubs or grieving their cherubs. I, myself, have donated over 25,000 hours to CHERUBS through all sorts of life’s hurdles including taking care of a very handicapped cherub and then losing him at 6 yrs old and during my own grief – and while working another job and running my own company. CHERUBS deserves 100% undivided attention by people dedicated to our services and research for 8 hours every day! We can only do so much with a volunteer staff. It’s time to move forward and to expand! It is time for a full-time staff. Let me make this very clear – donations will NEVER pay for salaries at CHERUBS, even though that is common practice at most charities. Salaries will be paid for by grants or designated funds.

Our goal, through our various projects, fundraisers, donations, Congressional Bills and grants, is to have an office, 3 full-time employees, and all 5 CDH funds full by the end of year, with a focus on more support services, financial assistance to families and $100,000’s to CDH Research. It’s a big goal, but we’ve done more and gone farther than anyone thought a group of CDH parents could! We won’t stop helping CDHCDH and with a full-time staff, we can do so much more!!!!! families and searching for the cause, prevention and best treatments of

Our dream (shared no doubt by all CDH families) is that by 2025, we hope to fund the nation’s first CDHECMO, in utero treatments, research, long-term care clinincs, genetic research, feeding clinics, support systems, financial aid and rooming for parents and siblings at the hospital so they remain together – staffed by the country’s CDH leading experts. CHERUBS wants to do for CDH what St. Judes does for Pediatric Cancer. How much will that cost? An astronomical amount of money! Yes, we dream BIG, but we’re determined and focused and I believe that we have the volunteers, members and CDH hospital complete with surgery, researchers to make this dream come true!

That’s the BIG focus, but we still have our services, CDH support, CDH research and CDH awareness to focus on too! We need help to do all that we want to do and to do so much more! We are working on MANY projects and fundraisers to fund all of our services and are always on the lookout for more CDH fundraising ideas and volunteers! Any ideas?

We have an on-line store, sell bracelets, books, CDH Awareness kits, cookbooks, calendars, 1000’s of items through Cafepress and Zazzle. We’ve had events, formal balls, golf tournaments, car washes, 5k’s, car shows, road rallies, raffles, etc.

What else can we do? Ideas?

We like to be ORIGINAL at CHERUBS! Smile We like to be respectful and we don’t like to infringe on other charity’s ideas (CDH charities or local charities), we like to lead the way! We’re creative here and love watching other charities learn from our ideas. But it’s hard always coming up with new ideas!

We are in an area in NC that has A LOT of charities who all have a lot of events! Repeating or holding the same event or fundraiser = competing for donations… we won’t do that. And we have 2 Ronald McDonald Houses that have many events that we are very respectful of (selling shirts for nights, dinners, walks, games, etc). We also don’t like to do events or fundraisers that could mislead people or not sell enough tickets so the prize isn’t so big, etc… that’s hard in this economy! Plus, we’re in the Bible Belt, we have a lot of laws and rules on fundraisers in NC that a lot of states don’t, which makes it harder. And with the economy as it is, we don’t like to sell expensive stuff… our $50 Angel Ball tickets are as high as we go… and attendees get A LOT for their money! Like I said, it’s HARD coming up with new ideas!!!!

We also have programs and events that are NOT fundraisers… just services to help families and raise awareness, such as our CDH HOPE totebag project, Adopt a Hospital project, Save the Cherubs Project and our CDH Conferences.

If anyone has ideas, please let us know! And PLEASE join the fundraising committee!!!! Smile

Thank you everyone for supporting CHERUBS and CDH Families!

Sincerely,
Dawn Williamson
CHERUBS President & Founder
CDH Mom

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  Save the Cherubs Congenital Diaphragmatic Hernia Awareness C Reply to this News Item Print this Topic E-Mail this Topic
Posted on Thu Mar 18, 2010 5:22 pm by Dawn Torrence Williamson
News Save the Cherubs Congenital Diaphragmatic Hernia Awareness Campaign


http://www.savethecherubs.org
http://savethecdhcherubs.blogspot.com/

Image
Photo Taken By Mandy Sroka Photography - http://www.mandysrokaphotography.com/


Cherubs are everywhere. They are your next door neighbor's new baby. The little girl on the swingset at the park. The teenager that sits behind your son in high school geometry class. The person behind you in the grocery store line. Their scars are hidden under clothes, their stories a bit sad and taboo to talk about - so the miracles are not seen with the naked eye and you have probably mistaken a cherub for a "normal" person many times. But they are there; walkling miracles with invisible wings. And missing babies that belong to the grieving parents who you don't see grieve; your local bank teller, the man who held a door for you at the gas station, the old woman who drove the car in front of you at the stop light this morning. Cherubs are everywhere.

Unless you have been affected personally by CDH, you probably have never heard of it. The mission of "Save the Cherubs" is to make Congenital Diaphragmatic Hernia a phrase everyone knows how to say and everyone knows what it means. By raising awareness, we hope to raise research funds to save these babies - Save the Cherubs.

Congenital Diaphragmatic Hernia occurs when the diaphragm fails to fully form, allowing abdominal organs into the chest cavity and preventing lung growth. Babies born with CDH often endure long hospitalizations and other complications such as pulmonary hypertension, infections, feeding issues, asthma and temporary developmental delay. Some babies develop worse complications and sadly, 50% of babies born with CDH do not survive. The cause of CDH is not known.

Cherubs are people who were born with Congenital Diaphragmatic Hernia, a severe and often fatal birth defect that occurs as often as Cystic Fibrosis and Spina Bifida. Every 10 minutes a baby is born with CDH - adding up to over half a million babies since 2000. Yet, CDH is given very little media attention, virtually no research money and until CHERUBS came along in 1995 there was no information and no support for families of babies diagnosed with CDH. We have no national telethons, no large corporate sponsorships. We have been struggling for years to bring attention to CDH and now, we are going to do so on a national level.

For 15 years, cherubs have been the awareness symbol of Congenital Diaphragmatic Hernia (CDH). Through this project, families around the world are working with CHERUBS, photographers and the media to raise CDH awareness in a unique and striking photo and marketing campaign, which we hope will take your breath away and make you want to learn more about CDH and how you can help save these children.

CHERUBS - The Association of Congenital Diaphragmatic Hernia Research, Awareness and Support was founded in 1995 to give hope and information to families of children affected by Congenital Diaphragmatic Hernia (CDH). We are a 501(c)III non-profit global CDH organization with members in 38 countries. Run solely by volunteers and donations, CHERUBS strives to allow families to have free access to information materials, support services, awareness projects and to make a CDH connection with other families going through the same ordeal. We are just a grassroots organization of families working hard to make a difference and trying to give Congenital Diaphragmatic Hernia Awareness wings to take flight.

CHERUBS is fighting hard to search for the cause, prevention and best treatments of CDH. We invite you to help us to help these families and to help Save The Cherubs.

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  Happy 15th Birthday to CHERUBS!!!!! Reply to this News Item Print this Topic E-Mail this Topic
Posted on Sun Feb 07, 2010 10:05 pm by Dawn Torrence Williamson
News Happy 15th Birthday to CHERUBS!!!!! Our charity was founded on February 7, 1995.

We have a new homepage, new CDH Awareness Shop, new info for parents, more web sites and many great projects.

The site is up - still under construction though so pardon our mess! Smile

The forums will undergo some changes in the next 30 days as well.

http://www.cdhsupport.org

This news item has 177 Views and 7 Comments. Post your comment

  Submit Your Videos to Go to Congress Reply to this News Item Print this Topic E-Mail this Topic
Posted on Sat Nov 28, 2009 10:29 am by Dawn Torrence Williamson
News Submit Your Videos to Go to Congress & help other families affected by Congenital Diaphragmatic Hernia!

http://www.youtube.com/watch?v=U4Unz-z4um4

We are working on a new video to release with the Congressional Bill to stop the trademark on CDH Awareness. This bill and a CDH Research Bill will be ready next week for CDH families to help submit to Congress!

As most of you know the trademark on "Congenital Diaphragmatic Hernia Awareness" has wrecked havoc in the CDH community with charities being threatened with lawsuits other cyber bullying. It is the ONLY trademark of it's kind in the USPTO and is currently being Petitioned to Cancel by CHERUBS with the support of many other CDH organizations and over 6000 CDH families and pediatric surgeons.

The Free Awareness Bill video will have the history of why the trademark was created along with court audio, court documents and other public information to show that this trademark was created to harm others and prevent awareness. But it will feature these videos and these beautiful faces standing up against the trademark to keep awareness free for those affected by Congenital Diaphragmatic Hernia and all other causes.

Other causes and charities will also be submitting their own videos as well. We will be working with the entire non-profit community to help keep awareness free for everyone and to stop this precedent setting trademark that limits awareness on a devastating birth defect that desperately needs awareness.

The Cherubs Bill video will include photos and videos of cherubs and their stories battling CDH. As we all know there is virtually no funding for CDH research. CDH has affected over half a million babies since 2000 - this means CDH has killed over a quarter million babies since 2000. More research on Congenital Diaphragmatic Hernia to find the cause, prevention and best treatments is desperately needed.

When the paperwork gets submitted to our Congressmen and Senators, the videos will be included. If you would like your cherub on this video please upload your video to YouTube! Grieving families can also participate! Make sure to e-mail us at awareness@cdhsupport.org with the Youtube link to your video!

This news item has 291 Views and 2 Comments. Post your comment

  2010 CDH Cherub Calendar Now Available! Reply to this News Item Print this Topic E-Mail this Topic
Posted on Fri Nov 13, 2009 3:25 pm by Dawn Torrence Williamson
News CHERUBS 2010 Calendar is now available! Featuring the faces of over 650 beautiful children (and adults!) born with Congenital Diaphragmatic Hernia! This full color, large size 11 x17" calendar is now available for $24.99 on our store at:

http://www.cafepress.com/cherubs.415954058

This calendar will make a beautiful holiday gift that will be treasured for years to come, long after 2010 is over!

We would like to say a huge thank you to the 100's of CDH families who contributed photographs for this year's calendar!

So this is where I've been hiding the past 2 weeks - this and a few other projects have kept me busy but it's worth it! Smile

I hope I got everyone's photos, we really tried to make sure everyone who said they wanted to be included was! But with over 650 photos to go through and add, it was very overwhelming and if I overlooked anyone I am very deeply truly sorry! Sad

You can view larger pictures of the calendar on the cafepress site.


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Cover
See, it pays to send us photos of your kids dressed like cherubs! Wink

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January

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February

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March

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April

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May

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June


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July

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September

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October

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November

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December


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  Who Has Connections in Washington? Reply to this News Item Print this Topic E-Mail this Topic
Posted on Tue Aug 25, 2009 4:35 pm by Dawn Torrence Williamson
News Hi there everyone,

I've spent a great deal of time talking to our lawyers this week and also we Advisors have been very, very busy for over 2 months now.

We have 2 projects that we'd like your help with:

1. A Congressional bill for CDH Research funds

2. A Congressional bill making it unlawful for anyone to own a trademark on awareness of a health or social issue

CDH Research is obviously needed and we've been talking about this for a while... I believe it was first bought up years and years ago here at CHERUBS. Time to get moving on that!

The anti-trademark bill would be called "Cherubs Law" for ALL babies affected by CDH. It would not only stop this tradmark on CDH dead in it's tracks (and save 2 years of legal work and the other party legal bills - our lawyers are pro bono)... but it would protect all diseases, birth defects, issues, etc from every having anyone try to own and profit off of awareness again.

Both bills will be a cinch to pass in Congress. We just have to get them to Congress.

This is where we need your help. We need a Congressman / Congresswoman to submit the bill. With 3000 members, surely one of you has some Congressional connections that would greatly benefit the CDH community and these babies.

If any of you have connections to Washington, please contact me at dawn.williamson@cdhsupport.org

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DISCLAIMER:The information on all pages of this web site is for education only. It is not meant to be used in place of proper medical care and advice. CHERUBS does not encourage or discourage any medical treatments or procedures. Our purpose is to educate families and medical care providers so that they may make the best decisions for the patients' interests. You can not compare your child to other children born with CDH, they are all different. The opinions aired by members are not necessarily the views of all members, staff, or of CHERUBS.


 


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