The following hospitals and organizations are currently conducting CDH research studies.     Each has their own set of guidelines.    Some studies include blood work on all family members, such include oral swabs.    Some studies also include grieving families.    There is no cost to families to participate in research studies.   We encourage members to participate in as much research as possible so that we can help save babies of the future from suffering from Congenital Diaphragmatic Hernia.



Identifying Genes Which Cause CDH
Massachusetts General Hospital
Boston, Massachussetts
Drs. Patricia Donahoe and Lewis Holmes
Contact: Meaghan Russell, Clinical Coordinator, at (617) 726-0828
mrussell@partners.org


Identifying Genes Which Cause CDH
Baylor College of Medicine
Daryl Scott, M.D., Ph.D.
Department of Molecular and Human Genetics
Baylor College of Medicine
One Baylor Plaza, MS BCM225
Houston, TX, 77030, U.S.A
Phone: 713-203-7242
E-mail: dscott@bcm.edu


Genetic Molecular Basis of CDH
DHREAMS Study
Columbia University Medical Center
1150 St. Nicholas Avenue
New York, NY 10032
ph: (212) 305-6987
info@cdhgenetics.com


Fryn's Syndrome
University of California
San Francisco, California
Contact: Anne Slavotinek, (415) 514-1783


Identifying Genes Which Cause CDH
Emergen Labs
Salt Lake City, Utah
Contact: Mary Meade, MMeade@emergen.com


Identifying Causes and Solutions of CDH
CHERUBS
Wake Forest, North Carolina