Dealing with CDH is hard.   It changes our lives forever.   Grieving families mourn always.   Families of survivors struggle and grieve over the loss of dreams.    Family and friends aren't quite sure what to do.   CHERUBS is run by volunteers - parents, grandparents, survivors and medical care providers who have personally dealt with Congenital Diaprhagmatic Hernia.   We haven't read it in a book or on a blog - we have personally lived it and when we say that we understand, we truly do.

Expectant Parents - We know it's overwhelming learning that your child has Congenital Diaphragmatic Hernia.  You're not alone.  CHERUBS is here to help make your journey a little easier by guiding you through accurate information and compassionate support.

Parents of CDH Survivors - There is so little long-term data on what to expect with CDH babies, how to work through those frustrating feeding issues, what to expect as they grow, etc.   CHERUBS has the world's largest long-term database, as well as a wealth of information and support through our over 3000 members.

Grieving Parents - Unlike "orphan" or "widow", where is no word in the English language for "grieving parent" - because the pain is too deep for works.   CHERUBS offers grieving parents a safe place of support where we understand what a broken heart feels like.

Adult Survivors - You're a rare breed; adult survivors of Congenital Diaphragmatic Hernia but at CHERUBS we have dozens of CDH survivors over age 20.  We a forum just for you.

Just for Dads - It's a fact that men and women handle stress differently.   It's also well-known that dads are sometimes overlooked and expected to be "strong".   At CHERUBS you can just be yourself and get the support that you need to and meet other dads.

Just for Grandparents - We realize that CDH is hard on grandparents too.  Not only are you worried about your grandbaby but your child as well.   We have a forum just for you.

Just for Kids - CDH Kid's Song, coloring pages and more.

Medical Professionals - Downloadable information for CDH parents, CDH Research, stories of patients and more.

CDH Forums - Our free message board for CDH families.  Come meet other parents, ask questions, learn about the journeys of others and make friends with people who have walked a mile in your shoes.

On-Call Support - CDH parents ready to lend a shoulder or an ear if you need to talk

Local Support - CHERUBS International & State Representatives and Hospital Angels

Downloadable Information - Read and print all of our materials for free including past newsletters, research results and more.

<>Below is some information tabulated from our survey that includes members who joined CHERUBS by April 30, 2009. The following data only includes primary patient information - it does not include secondary memberships (grandparents, additional parents, etc) or CDH researchers memberships.   This data includes 2431 CDH patients. It does not include all other non-patient or secondary members.

CDH Patients In CHERUBS Membership By State:
(click to view full graphic:)